Day 23: What do you say to yourself when you need a pep talk?
Everything is going to be fine. I’m not the only one who has the illnesses that I have. Keep hanging in there, the future is bright. Don’t give up.
Day 24: How have you managed to juggle your social life through your illness?
Well, right now I don’t have much of a social life. I pretty much talk on social media like facebook, twitter, etc… When I lived in South Carolina, I had friends that I would often go out with and they knew about my illnesses and we would go out when it was convenient for both of us. It was normal outings to me. Right now I just don’t have much of a social life. I live with my parents and take care of my nephew on certain days of the week. I’m not a recluse, just don’t have time for a social life right now.
Yesterday I forgot to do the Chronic Illness Challenge. Just wasn’t up to blogging. So here are my answers for yesterday and today.
Day 19: How do you feel about the future?
Sometimes I feel positive and sometimes I feel negative. It just depends. For the most part, I am positive. I feel that there will be more medical discoveries on the front. I also feel that for my personal future I will get to do what I want. That I will not always be living with my parents. I will be out on my own soon and taking care of myself. I know one day I will achieve my dreams and the future is positive.
Day 20: Have you met anyone with the same illness? Did it help?
I’ve met the lovely lady over at Nursing Notions and yes it does help knowing that she has similar experiences to me. I don’t feel so alone considering epilepsy. For the most part, I’ve only met people who have had friends or relatives with epilepsy. I haven’t met anyone else with hypothyroidism or panhypopituitarism. I know there are people out there, I just haven’t met anyone around here.
Day 17: How would things be different if you weren’t ill?
There would be so many things that would be different. I would be able to drive all the time without worrying about having seizures and having to carry a magnet to activate my VNS. I also would probably have a job. I might even have a family of my own and be out on my own. Many things that people without chronic illnesses take for granted I really want to do. Like be out on my own and have my own job. So I think there would be a lot of things that would be different.
Happy Valentine’s Day! I just thought I would go ahead and wish everyone a wonderful Valentine’s day! I usually don’t celebrate today because I am not in a relationship. However, I still want all out there to have a good one!
Day 13: Has your physical illness had any effect on your mental health? Explain.
I think it did in my early years of life. When you’re young and you have to live with chronic illnesses and you especially don’t understand it, especially epilepsy, you really don’t have a grasp on why it is happening to you and that can really take a toll on you. I was different in school and kids didn’t know what epilepsy was and because of that they bullied me because I was different. Thank the Lord and Lady I had my sister. From Kindergarten to early 5th grade I went to a Catholic school. Then later on in that ‘school year’ we switched to public school. I decided to stay back a grade to be with my sister. People looked on me as if I was dumb as well. Having chronic illnesses in your childhood is a very difficult thing. When I was in Catholic school some of my teachers didn’t know what to do when I had some of my seizures. I had Petit Mals and I would walk out of the classrooms and wouldn’t remember a damn thing. As I said, it does take a toll.
Now, it doesn’t really have any effect on my mental health. I do get those times when I get depressed, but I get out of it and get back to everyday life. You have to accept what the deities give you.
Day 12: Briefly explain to a healthy person what it is like to live with this illness.
Epilepsy: Epilepsy can be controlled using medicine and recently a surgery that inserts a generator that is called a Vagal Nerve Stimulator. It’s sort of like a pacemaker for the brain in a way. For some people, Epilepsy can be controlled with just medicine. Mine is controlled with three anti-convulsants and the VNS. Though even then it still isn’t fully under control. I had a Grand Mal seizure 4 months ago after being seizure-free for 18 months. To live with Epilepsy means that you never know if you will always be in control of your brain. Sometimes the body might give you a head’s up, known as an aura, but if it is a seizure like a Grand Mal you can blank out and never know it till you wake up. You’re confused and tired.
Hypothyroidism and Panhypopituitarism: I’m putting these two together because they are related to each other. They both deal with the Endocrine system. I take medicines for these and I can’t stop. If I do then it can seriously affect my health. Because my Thyroid and Pituitary glands put out low levels of hormones I have to take medicines to supplement the hormones. I also don’t know if I will ever be able to have a child because of these illnesses.
Overall, living with these illnesses are not easy. I’ve lived with them a long time and will have to live with them until I die. I hope that as medicine progresses we will find more ways to solving our illnesses.
Well I thought I would let you know how I’m doing on my Daith piercing. Yesterday I had my Daith piercing done. You can check out a picture of it on my instagram link at the bottom of the page. So far it is doing good. I only took one pill this morning for pain. I haven’t seemed to have any pain so far. I’m not going to go and say I’m cured yet. It’s still too early to tell. So I am going to wait it out and just see how it does. I had it done on my right side, which is my dominant side, and I keep forgetting that I brush up against my ear and it hurts when I do that. Other than when I brush up against the ear, it doesn’t hurt at all. I’ll keep you updated. Talk soon and have a good night.